Rare Disorder Turns Pennsylvania Teen Into A Real-Life Sleeping Beauty
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While being called a 'Real-life Sleeping Beauty' because of her unusually long sleeping bouts may sound glamorous, nothing could be far from the truth for 17-year old Nicole Delien. In fact, the Pennsylvania teen whose longest snooze has lasted for a record 64 days wishes she could just be a normal, sleep-deprived teenager!
If the sleeping sessions seem a little excessive even for a teenager, that's because they are. But Nicole has no control over them, for this beautiful teenager suffers from an ailment known as Klein-Levin Syndrome or Sleeping Beauty Sickness!
If you have never heard of it, you are not the only one. In fact, Nicole's sleeping sickness which began when she was just 6.5 years old, is so rare that it took visits to several hospitals before Dr. Michael Rancurello, a psychiatrist at Allegheny General Hospital in Pittsburgh, Pennsylvania, was able to diagnose it and provide some medication and advice to help manage it.
Now, whenever Nicole starts to appear listless and grumpy, her family and friends know she is getting ready to hibernate and let her sleep for as long as she needs to, waking her up only to eat and go the bathroom. While the average sleeping spell lasts between 18-19 hours, many are much longer. What's worse is that she has no clue when they will appear - Sometimes she is struck every few months, at other times the gap is as long as a full year.
Though it may appear to be fun, Nicole is missing out on many important events thanks to this strange ailment. Not only is she forced to skip school but also, major holidays - For example, the young girl has only been awake for three Christmas days since she was afflicted at the age of 7. And, it gets worse. During one of her lengthy snoozes, she even missed the opportunity to meet with pop star Katy Perry. Fortunately, the kind singer heard about her unusual illness and arranged to meet with her backstage at one of her other performances.
Known to affect only about 1,000 people around the world, Klein-Levin Syndrome normally strikes during teenage years and is believed to triggered by an illness or virus. Doctors are still not sure what causes it, but believe that it may have something to do with a malfunction of the hypothalamus, the part of the brain that controls the appetite and sleep functions.
The good news is that it magically disappears when the teens become adults and has no lasting effects. We sure hope Nicole's symptoms will go away soon so that she can lead a normal life again!
sources:kslfoundation.org, dailymail.co.uk,clickorlando.com
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863 Comments
- jakie1234157almost 10 yearsI can't believe that she sleep beauty that scariest sleeping for days
- animefan3almost 10 yearsI feel bad for her because she not going to have fun and do stuff the only going to sleep like sleeping beauty
- happypug12almost 10 yearsShe even LOOKS like Sleeping Beauty.
- animefan3almost 10 yearsShe dose look like sleeping beauty happypug12
- kittyclawalmost 10 yearsI feel so bad for her :(
- lizzy04almost 10 yearsI like naps, but that sickness would be frightening. Missing holidays?! That's just strange
- optimistic-editalmost 10 yearsif she can be sleeping beauty i want to be cinderella
- giggleralmost 10 yearsNot how it works… :-)
- emmabookworm5almost 10 yearsI feel bad. She must be really smart if she's asleep for so long, but can still catch up on schoolwork. (I can barely do my homework before I go to bed)
- bigmeloalmost 10 yearsReally? I didn't know that. Usually it takes me only half an hour, when I eat a little something I like to call 'HEBCILOC'. If you think that sounds creepy, what it really stands for is 'Hyperactive Espresso Beans Covered In Lots Of Chocolate'. :) They're from Trader Joe's, & they're delish!
- crystalmorialmost 10 yearsXD Oh, yeah, I know something like that, too. Still, it's good that you explained what that stood for. People might get the wrong idea.
- nikukyualmost 10 yearsYeah it's sounds like medicine!
- doctorwhotardisalmost 10 yearsSleeping Beauty is real! WOW! I feel bad...
- bluelovealmost 10 yearsSleeping beauty is real ö
- aphphilippinesalmost 10 yearsI dont know whether to envy her or pity her...
- lizzy04almost 10 yearsSame